Where to go from here.

I didn't sleep at all that night and woke up the next morning walking around like a zombie. Where to go from here, when you felt at the time, we received 'devastating news'.


We were told we had to go to the genetics department and talk with a doctor that dealt with this sort of thing. To be honest, she was awful, she had NO bedside manner and made us feel even worse than before. Scott was ready to blow up at her, but he didn't. I remember he was taking his styrofoam coffee cup and scraping up and down on the sides with his finger & 'she' keep on giving him a dirty look. We also had Kara, the genetics counselor, in the room with us. She was wonderful and gave us peace of mind. She actually explained to us, what we didn't understand what the doctor had told us.


The next step was another ultrasound, one of MANY. Our doctor, Dr. Mascola, she is truly the best doctor I have ever had. She kept us in the loop and during the ultrasounds she explained to us and showed us what they needed to keep an eye on. Everlly's ventricles in her brain were enlarged and had to be measured every month to see if they grew or were staying the same size. Another thing we had to worry about was Hydrocephalus or 'water on the brain'. If she did have that when she was born she might of had to have a stint to drain it over time. Luckily, she never needed that.


Everlly also had other markers of a baby with Down Syndrome. Thickness on the back of the neck, an Echogenic Intracardiac Focus, which is a small bright spot seen in the baby’s heart, short femur measurements and nasal bone measurements.


Every time we had an ultrasound it took a long time and we were stressed out every time. But on the otherhand, we got to see our baby a lot, and get lots of beautiful pictures and we didn't mind that one bit.


I remember in one of the last ultrasounds we could see the hair on her head on the ultrasound. Little did we know how much she would be born with!


I guess after a while we just came to accept the fact of our child having Down Syndrome, even though there might of still been a chance our baby wouldn't have it.